registry software

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Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry.
Scheible, Raphael;Kadioglu, Dennis;Ehl, Stephan;Blum, Marco;Boeker, Martin;Folz, Michael;Grimbacher,...
2020 jmir medical informatics DOI: 10.2196/17420 178 views

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jmir medical informatics
ISSN: 2291-9694 561 views

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collaboration in research data findability registry interoperability