Ethical considerations when conducting research with children and young people with disabilities in health and social care.

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ID: 96490
2020
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Abstract
Background Rights-based approaches for conducting research with children and young people are now widely accepted by those working in the field. Such approaches focus on the voice of the child and are underpinned by a firm recognition that children are experts on their own lives. However, children and young people with disabilities are less likely to take part in research. Aim To draw on doctoral research conducted with children and young people with disabilities to explore the ethical issues that arose concerning access, recruitment, consent, anonymity, confidentiality and sensitive issues, as well as what mitigated these issues. Discussion Research with children and young people with disabilities can pose additional ethical challenges. There is a growing body of literature about this area, but it needs further development. Conclusion Additional planning and preparation are vital in ensuring that children and young people with disabilities can participate in research in a meaningful way and that researchers conduct studies ethically. Implications for practice This paper has clear implications for research and nursing practice in terms of communicating with children and young people with disabilities, enabling them to express their views and participate in decisions about their lives.
Reference Key
mcneilly2020ethicalnurse Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors McNeilly, Patricia;Macdonald, Geraldine;Kelly, Berni;
Journal nurse researcher
Year 2020
DOI
10.7748/nr.2020.e1645
URL
Keywords
methodology research informed consent data collection consent study design ethical approval ethical issues mental capacity learning disability accessible information

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