[To act or not to act? Developments in prenatal and postnatal care for children with spina bifida aperta].

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ID: 80322
2019
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Abstract
To act or not to act? Developments in prenatal and postnatal care for children with spina bifida aperta Until the middle of the twentieth century, newborns with spina bifida aperta had low chances of survival. Advances in the treatment of hydrocephalus, among other conditions, led to increased chances of survival during the 1960s. This also revealed the downsides of the treatment of spina bifida patients since some considered the quality of life of a number of these patients to be unacceptable. But withholding treatment also had negative consequences, leading to an ethical deadlock. Over the past thirty years - besides postnatal closure of the neural tube defect - more emphasis has been put on selective pregnancy termination and sporadic active termination of life in newborns with very severe forms of spina bifida. At the same time, new treatment strategies, such as foetal surgery, are being developed. With this historical overview, we illustrate the way in which technological developments and ethical dilemmas are constantly affecting each other.
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lutters2019tonederlands Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors Lutters, Bart T H;Spoor, Jochem K H;de Jong, T H Rob;Kompanje, Erwin J O;Verhagen, A A Eduard;Brouwer, Oebo F;Groen, Rob J M;
Journal nederlands tijdschrift voor geneeskunde
Year 2019
DOI
D3858
URL
Keywords
countertransference dropout psychotherapeutic alliance psychotherapeutic failures psychotherapeutic treatments

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