How do we live with chronic disease? A rights-based approach promoting the wellbeing of children with chronic disease.

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ID: 56801
2019
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Abstract
This paper focuses on the life experiences of children with chronic disease, a group whose invisibility involves particular challenges in their relationship with professionals in important life contexts, such as family, school and hospital. The study includes two complementary phases: i) Phase 1, composed of 15 interviews with parents, education and health professionals and two focus group discussions with children, and children and their mothers; and ii) Phase 2, which included self-report questionnaires administered to parents (n = 152) and children with chronic disease (n = 176). Based on a mixed methodology, this study combines quantitative and qualitative methods assuming that plural approaches allow for a deeper understanding of the life conditions of children with chronic disease and their families. The results reinforce the reproduction of social stereotypes and the tendency to focus on the individual ability to solve problems, which still remain to be circumscribed to the people's chronic disease sphere. Moreover, this paper reveals the central role that inclusive contexts have on children's wellbeing.
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pais2019howciencia Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors Pais, Sofia Castanheira;Menezes, Isabel;
Journal Ciencia & saude coletiva
Year 2019
DOI
S1413-81232019001003663
URL
Keywords
qualitative research consumer perceptions opiate substitution therapy opioid replacement therapy pharmacotherapy in regional victoria

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