Managing Privacy and Data Sharing Through the Use of Health Care Information Fiduciaries.

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ID: 42908
2019
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Ranked #17 of 170 articles by views in Studies in health technology and informatics

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Abstract
Policy and regulation seldom keep up with advances in technology. Although data de-identification is seen as a key to protecting one's data, re-identification is often possible. Whether one's data is to be used for care, research, or commercial purposes, individuals are concerned about the use of their information. The authors propose the concept of an information fiduciary for holders of data, describe how it might be applied in a health care context, and outline considerations to determine whether a holder of health care-related information should be regarded as an information fiduciary.
Reference Key
demuro2019managingstudies Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors Demuro, Paul R;Petersen, Carolyn;
Journal Studies in health technology and informatics
Year 2019
DOI
10.3233/SHTI190156
URL
Keywords
privacy health policy data sharing de-identification fiduciary

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