“It helps me stay on track”: patient experiences using a mobile app for self-management of systemic sclerosis with a focus on fatigue in women
Clicks: 7
ID: 325047
2026
Article Quality & Performance Metrics
Overall Quality
Not rated
Combines reader engagement with the AI quality analysis. This
article has not been analysed, so there is no overall score —
reader engagement is measured and shown alongside.
Reader Engagement
0.0
/100
7 views
0 readers
AI Quality Assessment
Not analyzed
Readership in this journal
Ranked #15 of 46 articles by views in Rheumatology Advances in Practice
Most read
Least read
Bar heights use a square-root scale.
Mint this article as an NFT
Not yet mintedCreate a permanent, verifiable on-chain record of this article on the Scimatic Network. The NFT is held in your Journament account, and you can withdraw it to your own wallet at any time.
5
SUSD
one-off · no wallet required
Abstract
Abstract Objectives Fatigue is common and burdensome in people with systemic sclerosis (SSc), significantly impacting daily functioning and quality of life. Yet, it remains inadequately addressed in clinical care. This study aimed to explore participants’ experiences using the RENEW (Resilience-building Energy Management to Enhance Well-being) mobile app as a standalone self-paced intervention without peer coaching for fatigue self-management. Methods Semi-structured interviews were conducted with participants with SSc following completion of the 12-week RENEW mobile app intervention. Interviews were analyzed using RADaR (Rigorous and Accelerated Data Reduction) technique in combination with thematic content analysis. Results Fifteen women were included in the analysis (mean age 56 years ± 10), which reflects the higher prevalence of SSc among women. Among participants, 53% had limited SSc, while the remaining had diffuse SSc or overlap, and 40% had been diagnosed with SSc for less than 5 years (short duration). Four themes were identified: 1) the RENEW app and its features were intuitive; 2) the RENEW app’s content enhanced the learning experience; 3) the RENEW app became a partner to support SSc self-management; and 4) refinements to the app could enhance the patient experience. Conclusion The RENEW app was perceived as a relevant and user-friendly tool for supporting fatigue self-management in SSc. Findings suggest that a standalone app-based approach may offer a scalable option for fatigue self-management in SSc, while also highlighting areas for refinement to improve engagement and long-term use. Clinical trial registration number clinicaltrials.gov, NCT07402863.
| Reference Key |
openalex_W7203478944
Use this key to autocite in the manuscript while using
SciMatic Manuscript Manager or Thesis Manager
|
|---|---|
| Authors | Yen T. Chen, Alexandra E. Harper, Mary Alore, Elizabeth Haro, John Morris, Dinesh Khanna, Susan L. Murphy |
| Journal | Rheumatology Advances in Practice |
| Year | 2026 |
| DOI |
10.1093/rap/rkag102
|
| URL | |
| Keywords | Keywords not found |
Citations
No citations found. To add a citation, contact the admin at info@scimatic.org
Comments
No comments yet. Be the first to comment on this article.