o adoecimento pelo cancer de laringe the illness narrative for larynx cancer
تجربة الإصابة بسرطان الحنجرة: سردية المرض لسرطان الحنجرة
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Abstract
With the purpose of improving the care of laryngectomized patients, the aim is to understand the illness experience of patients and families of having larynx cancer. The participants were 14 laryngectomized patients and their families, in different post-surgical periods. The narrative analysis searched for categories which were understood on the basis of an anthropological focusing the culture. The understanding that the participants had of the illness experience of having a larynx cancer shows us that this process is one of suffering, of searching of strategies of coping, of evaluating the survival to the surgical treatment, which were based on the cultural system, which is different from the biomedical model of the health professionals and they must be considered in the approach for the rehabilitation.
بهدف تحسين رعاية المرضى الخاضعين لاستئصال الحنجرة، تمثل الهدف في فهم تجربة المرض بسرطان الحنجرة لدى المرضى وعائلاتهم. تألف المشاركون من 14 مريضاً ممن استُؤصلت حناجرهم وأفراد من عائلاتهم، في فترات زمنية متفاوتة بعد الجراحة. وسعى التحليل السردي إلى استخلاص فئات فُسّرت استناداً إلى منظور أنثروبولوجي يركز على الثقافة. ويُظهر إدراك المشاركين لتجربة الإصابة بسرطان الحنجرة أن هذه العملية تقوم على المعاناة، والبحث عن استراتيجيات التأقلم، وتثمين النجاة من التدخل الجراحي، والتي استندت إلى نسق ثقافي يختلف عن النموذج الطبي الحيوي للكوادر الصحية، مما يستوجب أخذها بعين الاعتبار في النهج المتبع لإعادة التأهيل.
| Reference Key |
zago2001revistao
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|---|---|
| Authors | ;Márcia Maria Fontão Zago;Elizabeth Barichello;Sabrina Hannickel;Namie Okino Sawada |
| Journal | FEMS microbiology letters |
| Year | 2001 |
| DOI |
10.1590/S0080-62342001000200003
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| URL | |
| Keywords |
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