Parenting a child with autism

Clicks: 342
ID: 90135
2019
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Abstract
ABSTRACT Objective: This study analyzes subjective aspects associated with parents’ perception of the changes that have affected their lives since the birth of their child with autism spectrum disorder (ASD). Methods: A qualitative study, using a narrative approach. Semi-structured interviews were conducted with 7 fathers and 16 mothers of children with ASD enrolled in a special needs school in Salvador, Bahia, Brazil. The interviews were transcribed, analytical categories were defined, and data interpreted. Results: Five categories were identified: “Emotional and Health-Related Effects”, “Effects on Daily/Professional and Academic Life”, “Effects on Marital and/or Affective/Sexual Life”, “Effects on Social Life”, “Adaptation Strategies”. The analysis showed that, despite the impacts suffered, social support, professional help can facilitate parents’ adjustment to life changes following the birth of a child with ASD. Conclusion: The physical and emotional demands of living with and parenting a child with ASD are enormous, include changes in social roles and in couples’ social and affective/sexual lives, highlighting the need for parents to receive support from healthcare professionals, particularly mental health professionals. Care strategies need to be implemented for parents, in addition to the healthcare provided to their children, in order to improve the comprehensive care given to the child with ASD.
Reference Key
aguiar2019parentingjornal Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors Aguiar, Márcia Cristina Maciel de;Pondé, Milena Pereira;
Journal jornal brasileiro de psiquiatria
Year 2019
DOI
DOI not found
URL
http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0047-20852019000100042&lng=en&tlng=en
Keywords
Medicine Science Agriculture (General) environmental sciences agriculture public aspects of medicine psychiatry gynecology and obstetrics urban groups. the city. urban sociology demography. population. vital events city population. including children in cities, immigration

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