Collaboration and new data in ACTION: a learning health care system to improve pediatric heart failure and ventricular assist device outcomes.

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ID: 67053
2019
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Abstract
Outcomes in pediatric heart failure and ventricular assist devices (VADs) remain suboptimal. Given the complexity and limited numbers, centers cannot be expected to acquire mastery and generalizable knowledge independently. Recognizing this problem, the community has formed Advanced Cardiac Therapies Improving Outcomes Network (ACTION), a collaborative learning health care system committed to unrelenting collaboration and continuous learning to improve critical outcomes in pediatric heart failure. ACTION is inclusive of all interested parties and believes the fastest and most effective way to make progress is through working together. ACTION's approaches to collaboration and data sharing will be highlighted.
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peng2019collaborationtranslational Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors Peng, David M;Rosenthal, David N;Zafar, Farhan;Smyth, Lauren;VanderPluym, Christina J;Lorts, Angela;
Journal translational pediatrics
Year 2019
DOI
10.21037/tp.2019.07.12
URL
Keywords
quality improvement pediatric heart failure learning health care system real world evidence ventricular assist devices (vads)

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