From the Child’s Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care

Clicks: 394
ID: 53249
2018
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Abstract
Despite vast improvements in disease-based treatments, many children live with life-threatening disorders that cause distressing symptoms. These symptoms can be difficult to comprehensively assess and manage. Yet, frequent and accurate symptom reporting and expert treatment is critical to preserving a patient’s physical, psychological, emotional, social, and existential heath. We describe emerging methods of symptom and health-related quality-of-life (HRQOL) assessment through patient-reported outcomes (PROs) tools now used in clinical practice and novel research studies. Computer-based and mobile apps can facilitate assessment of symptoms and HRQOL. These technologies can be used alone or combined with therapeutic strategies to improve symptoms and coping skills. We review technological advancements, including mobile apps and toys, that allow improved symptom reporting and management. Lastly, we explore the value of a pediatric palliative care interdisciplinary team and their role in assessing and managing distressing symptoms and minimizing suffering in both the child and family. These methods and tools highlight the way that novel, new, and innovative approaches to symptom assessment and management are changing the way that pediatrics and pediatric palliative care will be practiced in the future.
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brock2018fromchildren Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors Brock, Katharine E.;Wolfe, Joanne;Ullrich, Christina;
Journal children
Year 2018
DOI
DOI not found
URL
http://www.mdpi.com/2227-9067/5/4/45
Keywords
Biology (General) Medicine (General) Medicine Information technology Technology Pediatrics Computer applications to medicine. Medical informatics Science (General) Science environmental effects of industries and plants renewable energy sources environmental sciences telecommunication bibliography. library science. information resources

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