evaluating the linguistic appropriateness and cultural sensitivity of a self-report system for spanish-speaking patients with cancer

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ID: 161534
2014
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Abstract
Spanish speakers in the United States encounter numerous communication barriers during cancer treatment. Communication-focused interventions may help Spanish speakers communicate better with healthcare providers and manage symptoms and quality of life issues (SQOL). For this study, we developed a Spanish version of the electronic self-report assessment for cancer (ESRA-C), a web-based program that helps people with cancer report, track, and manage cancer-related SQOL. Four methods were used to evaluate the Spanish version. Focus groups and cognitive interviews were conducted with 51 Spanish-speaking individuals to elicit feedback. Readability was assessed using the Fry readability formula. The cultural sensitivity assessment tool was applied by three bilingual, bicultural reviewers. Revisions were made to personalize the introduction using a patient story and photos and to simplify language. Focus group participants endorsed changes to the program in a second round of focus groups. Cultural sensitivity of the program was scored unacceptable (x¯=3.0) for audiovisual material and acceptable (x¯=3.0) for written material. Fry reading levels ranged from 4th to 10th grade. Findings from this study provide several next steps to refine ESRA-C for Spanish speakers with cancer.
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tofthagen2014nursingevaluating Use this key to autocite in the manuscript while using SciMatic Manuscript Manager or Thesis Manager
Authors ;Cindy Tofthagen;Barbara Halpenny;Maribel Melendez;Laura Gonzalez;Veronica Sanchez Varela;Rosalyn Negrón;Donna L. Berry
Journal Veterinary parasitology
Year 2014
DOI
10.1155/2014/702683
URL
http://dx.doi.org/10.1155/2014/702683
Keywords
Nursing

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